Does anyone actually post here anymore?

[JCH]

If you do, and you're genuine, male or female with or without spina bifida..
reply to this message.


James
aka
JCH

[sherry]

Post by JCH
If you do, and you're genuine, male or female with or without spina bifida..
reply to this message.
James
aka
JCH

James,
My name is Sherry and i do have spina bifida,with hydrocephalus, i am
35 from west virginia, i am interested in this group, and when i
posted my first message here, i thought i would get more response than
i did, only one person emailed me.I was hoping that i would recieve
more responses,to the concerns i had, and also if anyone just wanted to
talk, and become friends, but that didn't happen,if there is anything i
can do to help you, please feel free to email me and let me know.
Thanks,
***@yahoo.com
P.S. I truly hope that more people respond to this message!

[JCH]

Post by sherry

Post by JCH
If you do, and you're genuine, male or female with or without spina bifida..
reply to this message.
James
aka
JCH

James,
My name is Sherry and i do have spina bifida,with hydrocephalus, i am
35 from west virginia, i am interested in this group, and when i
posted my first message here, i thought i would get more response than
i did, only one person emailed me.I was hoping that i would recieve
more responses,to the concerns i had, and also if anyone just wanted to
talk, and become friends, but that didn't happen,if there is anything i
can do to help you, please feel free to email me and let me know.
Thanks,
P.S. I truly hope that more people respond to this message!

Uh Hello Sherry.. its James :P

LOL....


JCH
aka James ;)

[Heath]

Hi everyone. I am Heather 35 years old with spina bifida. I join the
group to meet people. It's hard to figure what to say sometimes. But if
anyone needs to talk or just someone to listen, e-mail me
***@aol.com.

[JCH]

Post by Heath
Hi everyone. I am Heather 35 years old with spina bifida. I join the
group to meet people. It's hard to figure what to say sometimes. But if
anyone needs to talk or just someone to listen, e-mail me

I think you have a point Heather.. it is hard to figure out what to say, but
mostly when I go on newsgroups its not to talk about my personal health
problems.. I just have fun.. I encourage anyone else to do the same
although, seeing as it is a spina bifida newsgroup, theres no harm in asking
questions to each other about anything and everything to do with SB.

JCH

[Amy Sargent]

I mostly read here. I think I'm genuine. I'm female, without spina bifida
(I do have hydrocephalus, I have had "related soft-tissue cysts. I asked my
doctor whether I had spina bifida occult [apparently a milder form? which
someone had brought up somewhere on the net]; the answer to that one
apparently is no.)

Post by JCH
If you do, and you're genuine, male or female with or without spina bifida..
reply to this message.
James
aka
JCH

[JCH]

Post by Amy Sargent
I mostly read here. I think I'm genuine. I'm female, without spina bifida
(I do have hydrocephalus, I have had "related soft-tissue cysts. I asked my
doctor whether I had spina bifida occult [apparently a milder form? which
someone had brought up somewhere on the net]; the answer to that one
apparently is no.)

Kind of strange to hear from someone that has hydrocephalus but doesn't have
spina bifida - I always thought that the two were together sometimes
(although I have only got spina bifida, a more severe form)

However, it is nice to know that genuine people still post here :)



JCH

Post by Amy Sargent

Post by JCH
If you do, and you're genuine, male or female with or without spina

bifida..

Post by JCH
reply to this message.
James
aka
JCH

[sherry]

Post by JCH

Post by Amy Sargent
I mostly read here. I think I'm genuine. I'm female, without spina

bifida

Post by Amy Sargent
(I do have hydrocephalus, I have had "related soft-tissue cysts. I asked

my

Post by Amy Sargent
doctor whether I had spina bifida occult [apparently a milder form? which
someone had brought up somewhere on the net]; the answer to that one
apparently is no.)

Kind of strange to hear from someone that has hydrocephalus but doesn't have
spina bifida - I always thought that the two were together sometimes
(although I have only got spina bifida, a more severe form)
However, it is nice to know that genuine people still post here :)
JCH

Post by Amy Sargent

Post by JCH
If you do, and you're genuine, male or female with or without spina

bifida..

Post by JCH
reply to this message.
James
aka
JCH

[sherry]

Hello James, Heather, Amy, and anyone else i have not mentioned, its
been quite awhile since i have been out here, so i apologize for that,
i have going back and forth once again to alotta different dr.s to see
if someone can and will help me with my dilemma,I have a dicubitus
ulcer, that does not seem to want to heal therefore, no one will do the
flap surgery to repair, and i still have the bladder problem i
mentioned in an earlier posting, i am scheduled to go to
charlottesville va., to see a urology specialist, and they have spoke
of rebuilding my bladder among other suggestions,i am not sure what
will become of things, guess i will just have to wait and see, so wish
me luck!, and again if anyone wishes to correspond with me through
email, please feel free to do so at ***@yahoo.com, i also
wanted to mention, if anyone is interested, i was told about a website
that features models, with disabilities, guys and girls, so check it
out, you may find it interesting, the website is
http://www.enablingelegance.com/welcome.html
hope all of you are doing good, and hope to hear from many of you soon,
take care,
Sherry